MSA Trust

For Young People

When someone in your family is diagnosed with Multiple System Atrophy (MSA) you may have lots of questions. If you are 11-17 years old and not sure how to find the answers you need, use this web hub to get you started. If you are younger than 11, take a look at our Activity Book for children.

We hope that the information here will answer most of the things you may be thinking about. Click on the sections below to find out more on each topic.

If you have other questions or concerns about MSA and how it is affecting the person you know, you can contact the MSA Trust by phone or email. One of our MSA Nurse Specialists will get back in contact with you. Their contact details can be found by clicking here.

We would be very grateful if after using this MSA Trust Young People web hub, you could complete the short survey here. This is so that we can provide the best information on MSA to people aged 11-17 in the future. Thank you so much for your time.

Version 1.0 Created: 04.2021 Review: 04.2024

How does someone find out they have MSA?

Who does someone need to see to get a diagnosis? Often a person with MSA...

How may MSA affect family life?

When a parent or grandparent has MSA, it will change their life, and yours too....

Ideas for ways you can help your loved one with MSA

Your loved one with MSA will not want your life to be put on hold....

Key things to know

Why my family? You may wonder why someone you know and love has MSA. Understandably...

Managing symptoms – Who can help?

Not everyone with MSA has all the possible symptoms, but different people are available to...

Managing your feelings and emotions

When someone you love has a serious medical condition like MSA it is understandable and...

Symptoms of the Brain Stem area

Symptoms due to damage in the brain stem area are also known as autonomic symptoms....

Symptoms of the Cerebellar area

MSA damage in the cerebellar area causes speech to slur and balance to become difficult....

Symptoms of the Parkinson’s area

Some examples of the Parkinson’s type symptoms someone with MSA may have: Stiff arms and...

What are the symptoms of MSA?

Symptoms is the word doctors use for the problems a person describes. There can be...

What is being done to find out more about MSA?

The MSA Trust links with researchers around the world to find out why and how...

What is Multiple System Atrophy?

Multiple system atrophy (MSA) is a condition that affects the brain. A protein in the...

What treatment is there for MSA?

Although there is no treatment to cure MSA, there are many ways to manage symptoms...

Where can you get support?

We all have a small group of people around us that we know love and...

Who gets Multiple System Atrophy?

Can anyone get MSA? Most people who develop MSA are aged between 50 and 60...

Multiple System Atrophy Trust