MSA Trust

Sharing Your Story

Why share your story?

Our members are at the heart of everything we do at the MSA Trust. One of the ways our members can help the Trust with its work is to share their stories and experiences of living with MSA. Personal stories are a vital way for us to build community and show those with MSA that they are not alone. It is also vital in helping us raise awareness, secure funding and assist us in our goal of seeing a world free of MSA. By sharing personal experiences of MSA we can best demonstrate why the continued work of the MSA Trust is needed.


How will your story be used?

Your story may be used in campaigns, fundraising requests to businesses and charitable Trusts, social media or in the MSA News magazine. In this case we could always protect your privacy and only use your first name.

If you are interested in participating you can do so with the form here – Please note, it cannot be saved as you go so you may want to write it separately and then complete the form. We can also send you a copy in the post if you would prefer.

People who’ve shared their story often find it a really positive experience and it can be a chance to make a real difference for people living with MSA and their families. Any questions or concerns please get in touch at