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MSA Needs Survey 2022

Our second MSA Needs Survey was completed by 520 respondents including people living with MSA, carers and people that had previously cared for a loved one.

The survey was conducted across the UK and Ireland, with responses collected by October 2022 through a combination of paper and online questionnaires.

The results highlighted that there was significant scope to improve the quality of life for people affected by MSA. The findings directly informed the Trust’s organisational strategy over the next four years, shaping future service development, new project activity, and our policy and influencing work across the charity and wider health and social care sectors.

Below you can access a Summary Document outlining the key messages from the survey. A Technical Report is also available to download, providing a detailed analysis of the data along with conclusions and recommendations.

Both the 2019 and 2022 MSA Needs Surveys were conducted independently by the research company IQVIA.

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