Planning for the Future
Below you will find links to pages that all contain information we hope you will find constructive, sensitive and helpful in assisting you to plan for the future now you have been given a diagnosis of Multiple System Atrophy (MSA). It may also be beneficial to read and consider these topics with your main carer, family members or friends.
The first and most important message in planning for the future is to plan to get on with life and live every day to the fullest. Think about things you have always wanted to do or places you have wanted to go and, if possible, do these now – seize the moment and enjoy it.
The first tile below is an overview and explains why planning for the future can be positive and empowering. The tiles after this provide information on specific topics. These topics, from our experience at the MSA Trust, are the things that may need to be thought about when you have MSA. However, everyone is an individual and although some issues may occur, this does vary from person to person. Understanding how different situations may impact on you will assist you to effectively plan and think about how you would want to manage these potential situations.
There is no doubt that thinking through the issues we are talking about on these pages is helpful to most people with MSA. However, it is vital that this is balanced with getting on with living and enjoying what you can do, whilst you can do it.
The MSA Trust is here to support anyone affected by MSA. If you have any questions about the information on this page, please contact us and we will do our best to help you.
Disclaimer
We have taken every care to ensure the accuracy of the information contained in this publication. However, the information should not be used as a substitute for the advice from appropriately qualified professionals. Speak to your doctor, qualified health care professional or legal professional before taking any action. Please note that personal views and opinions expressed are not necessarily endorsed by the Trust. The resource is produced independently, is not influenced by sponsors and is free from endorsement.
References for this resource are available by contacting support@msatrust.org.uk. Your feedback helps us ensure we are delivering information to the highest standard. If you have any comments or suggestions, please contact us at support@msatrust.org.uk
REVISION DATE: 03/24 | REVIEW DATE: 03/27 | VERSION: 1.1
01. Overview and Context – Planning for the Future
Plan for the worst and hope for the best. The reality is that you have...
02. Advance Care Planning
Reading this information may be challenging and distressing for some. This is only natural –...
03. Mobility
Changes to mobility is one of the most common reasons why someone with MSA seeks...
04. Speech
By the time of getting a diagnosis of MSA many people have noticed changes to...
05. Bladder
Point to note – It is important to put bladder problems into context. Over half...
06. Bowels
Most commonly people with MSA experience increasing sluggishness of the bowel and risk a build-up...
07. Blood Pressure
Blood pressure control can be problematic in MSA. For those people with MSA who have...
08. Breathing Difficulties
Overtime people with MSA are unable to exercise to a level that creates deep breathing,...
09. Towards the end
Discussing dying may seem frightening, but often doing so can provide reassurances about your concerns....
10. Care Support
Everybody living with MSA will, as time goes by, need increasing amounts of help with...
11. Care Options and Considerations
Hospice care: Care support of a different kind can sometimes be offered by hospices. Hospices...
12. Financial Affairs
Benefits: Understanding which benefits may become relevant to you as your MSA progresses is important...