The MSA Community Research Group brings together people living with MSA, carers, and family members who are interested in MSA research and may want to help shape its future. Through the group, you’ll receive automatic invitations to our twice-yearly research webinars with leading experts, along with updates and opportunities to get involved in surveys, focus groups. You may also be offered relevant opportunities to share your experiences with researchers and pharmaceutical companies, as and when they arise, helping ensure that studies are meaningful and focused on what truly matters to the MSA community.
Supporting Research Through Lived Experience
The MSA Trust is sometimes approached by pharmaceutical companies, research organisations and individual researchers who want to better understand the lived experience of people affected by MSA. These organisations are keen to learn directly from those living with the condition, as well as carers and family members, to ensure their research is relevant, meaningful, and grounded in real-world experience. By gathering insights from our community, they can improve how studies are designed, identify what matters most to those affected, and help shape future treatments, care, and support. Through the MSA Community Research Group, we’re able to connect these opportunities with people who want to share their experiences and make a difference in MSA research.
Exclusive Webinars with Leading Experts
Twice a year, our community are invited to join our online MSA Research Webinars, co-chaired by Dr. Viorica Chelban, Neurologist and Senior Clinical Research Fellow at University College London and Dr. Chris Kobylecki, Consultant Neurologist at Manchester Centre for Clinical Neurosciences, Salford Royal NHS Foundation Trust and Chair of our Scientific Advisory Committee. Together they curate an exceptional line-up of guest speakers, ensuring you gain insights from the brightest minds in MSA research. The MSA Community Research Group get automatic invites to these webinars.
Our webinars are fantastic opportunity to connect with researchers, ask questions, and contribute to the conversation about the future of MSA treatment. Our next webinar will take place later in 2026. Our most recent research webinar took place in February and is available to view below.
Research Webinar Feb 2026 (Nutrition and Exercise in MSA)
You can view our November 2025 research webinar on Imaging in MSA here:
February 2025