MSA Trust

MSA Candlelight – A time for Remembrance and Hope

What a lovely afternoon we had in the Hall for All, Newry, County Down, Northern Ireland. The MSA flag shone in the sun and over 60 people joined us to remember their loved ones, light candles in their memory and to listen to how the Trust is continuing their hunt to find the cause and hopefully the cure for MSA.

We had an informative presentation from Dr Christopher Kobylecki that outlined the research strategy and aims of the Trust. You can view the presentation below :

MSA research update 2023

This gave us a fantastic overview of the current research being undertaken; recent developments; such as the new diagnostic criteria and current drug trials and what they might achieve. Although we are still not clear about what triggers MSA and we do not have a cure, there was much to be hopeful about in Dr. Kobylecki’s talk. We were so pleased that the event gave an opportunity to our supporters to meet professionals in MSA research such as Dr. Kobylecki, and ask personal questions about their loved one.

Our amazing volunteers gave us incredible support and we enjoyed a lovely afternoon tea of scones and traybakes following our event. Thank you to the wonderful readers and the Male Voice choir from Cloughmore. Their soulful singing did not leave a dry eye in the house as we lit the candle in remembrance of all those sadly lost to multiple system atrophy.

It was a lovely, special and poignant afternoon that saw so many people who have experienced the sadness of losing their loved one come together with a renewed sense of belonging to a special community, the MSA community of hope.

Thank you all who attended.

Karen Walker

Chief Executive

Disclaimer: The views and opinions expressed in the blogs published on these pages are those of the authors and do not necessarily reflect the official policy or position of the MSA Trust.

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