MSA Trust

Volunteering Roles at the MSA Trust

What Roles are available at the MSA Trust?

Below are brief descriptions of the current volunteering opportunities at the MSA Trust. The positions available in locations around the UK and Ireland vary depending on local need, but we welcome all enquiries. For more information on the roles and to apply please contact volunteer@msatrust.org.uk.

If you have a particular interest or area you feel you can help with that isn’t detailed below, please do get in touch to have a conversation with our team.

Volunteering with an MSA Trust Support Group

In-Person Support Groups

Our Support Groups provide essential, local help to people affected by MSA. These Groups bring together people affected by MSA in an environment of mutual support and friendship, to help tackle the sense of isolation felt by having a rare disease. We are limited in the number of Groups we can effectively manage but we are constantly reviewing our locations based on member interest. Please contact us if you are interested in setting up a new Group to discuss this possibility.

Digital Support Groups

Due to the ongoing Covid-19 crisis all our Support Groups are meeting digitally. We have combined some of our existing support group areas and each group is meeting around once every 2 months.

In the future we look forward to having a combination of both in-person and Digital Support Groups and will explore the best ways to involve our volunteers.

Support Group Leaders – Our Support Groups could not run without our volunteer Support Group Leaders. They help us with the local administration for the groups and are our hosts and representatives at the meetings. The role involves organising around three meetings a year. This includes booking the meeting space in conjunction with Trust, arranging refreshments on the day and where possible arranging talks from local professionals.

We are currently looking for Support Group Leaders for specific locations

  • Bristol
  • Worthing, West Sussex
  • Berkhampstead, Hertfordshire
  • Shipley, South Yorkshire
  • Lincoln, Lincolnshire

Support Group Helpers – Support Group Helpers assist the Support Group Leader as needed but especially with practicalities on the day. During the meeting they help with refreshments and provide a listening ear to our members.

Our in-person Support Groups are currently suspended due to Covid-19, however if you would like to register an interest please do get in touch.

Events Volunteers – As a small organisation we struggle to be at every event our wonderful supporters take part in. Our Events Volunteers help at local events by representing the MSA Trust. This could be in the crowd cheering people on or by contributing other skills such as event photography.

User Information Panel Members – As a member led organisation we greatly value the contribution of people with MSA, Carers and healthcare professionals to the review process for our published information materials. This includes our ever-expanding factsheets, published guides for members and healthcare professionals and one-off projects. User Information Panel Members proof-read and give feedback on new materials and as part of the review process for existing documentation.

Office Volunteers – Our Office Volunteers provide administrative support to our Services and Fundraising Teams in our London Office helping us to support our members and raise vital awareness of MSA. Our Office opportunities are currently limited due to Covid-19 but if you have skills you wish to contribute and are London based, please do get in touch.

Helping Hands Volunteers – We are always eager to make use of the enthusiasm and skills of those interested in Volunteering for us. Helping Hands Volunteers are those members who wish to share their skillsets in a variety of ways, this role can involve a wider variety of tasks which may include, but is not limited to:

  • Raising awareness by speaking local event
  • Representing the Trust locally such as handing out leaflets at local hospitals/ hospices
  • One-off bucket collections
  • Conducting desk-based work such as, helping us to research MSA support services worldwide