MSA Trust

Raising Awareness

Multiple System Atrophy (MSA) is a rare and progressive neurological disorder that affects around 5 people in every 100,000. The rarity of the condition makes it even more challenging for the MSA community to find the support they need.

What can you do?

We will ask you to join in with awareness raising activities that will help raise the profile of MSA during MSA Awareness Week – both within your network of family and friends and with Heath and Care Professionals.

MSA Awareness Week is marked in March every year so watch this space for more details then.

Following on from our MSA Needs Surveys, which were completed in 2019 (read more about these here), some members of our community agreed to be filmed talking about their life with MSA and some of the difficulties they face.

Please do share far and wide to help people understand some of the physical and emotional struggles that people with MSA deal with everyday.

Click play below to hear their stories and please make a donation if you have been moved by it – DONATE HERE

Do you have a story about your connection to MSA, or your experience of it, that you would like people to know about? Are you planning or have done a fundraising event that you would like published in the press? Then you have come to the right place!

Download our media pack (below) and get helpful tips and advice on how to get your story published in the press, or have it covered on TV or radio.

We have also put together a press release template that you can download (below) and use.

If you would like more information about MSA and the work of the Trust, download our Fundraising Leaflet.

Please get in touch with us if you have any questions –

MSA Trust – Media Pack

MSA Trust – Media Pack

Download file (3.51 MB)

Press Release Template

Download file (41.06 KB)

Great news! We were on BBC Radio 4 Charity Appeal where we recorded an appeal with our wonderful supporters, Paul and Gill Wheeler.


Thank you so much to Paul and Gill Wheeler who so kindly agreed to record their experience of living with MSA. They asked for donations towards our MSA Nurse specialist service, as they explain in their appeal how they felt that our Nurses are a “God-send!”


Alternatively call the office on 0333 323 4591 to make a donation over the phone, or raise a cheque payable to ‘MSA Trust’ and send to : MSA Trust, 51 St Olav’s Court, Lower Road, London, SE16 2XB

Please encourage as many of your friends, relatives, and anyone else you can think of to listen to the recording. Let’s raise awareness of Multiple System Atrophy (MSA) and the vital work of the Trust.

MSA Awareness Week

Monday 21st – Sunday 27th March 2022 As a little-known and little-understood disease, MSA rarely...