MSA Trust

MSA Needs Surveys

Previous research has demonstrated that MSA has a severe impact on quality of life. We wanted to conduct further research to explore the needs of people living with MSA. This was to help us improve the services and support we and other organisations, offer and better campaign on behalf of people living with the condition.

The research looked at both people living with MSA and people who previously cared for somebody with MSA, making it the largest ever study of people affected by the condition. The survey covered the UK and Ireland and all results were collected by August 2019 through paper and online questionnaires.

Below you will find a Summary Document containing of some of the key messages that we found, showing the huge impact that living with MSA has on those affected and their carers.

You can also download the Technical Reports for both surveys, which gives an in-depth analysis of the data and some conclusions and recommendations.

If you have any questions or queries about anything you have read please get in touch with us.

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We regret to announce the MSA Trust will be suspending all of our Support Groups and our memorial event due to the outbreak of the Coronavirus Covid-19. For our full statement, please click here. Our other services and support will continue to be unaffected and available to everybody affected by MSA. For any questions please contact us at

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