World MSA Day 2023
It’s World MSA Day and as I sit and reflect on what has happened since last World MSA Day, I feel very positive about the work that is going on, both from a research perspective and supporting people living with multiple system atrophy.
Our research to find a biomarker to enable earlier diagnosis is a crucial step in improving the management and treatment of MSA and I take heart from the knowledge that the research is advancing. Our just released grant call is another exciting opportunity for innovative and challenging projects that will bring us to a closer understanding of this disease. The Trust is very grateful for the work of our Trustee and Chair of the Scientific Advisory Panel, Dr Christopher Kobylecki and the panel itself for their support in undertaking grant calls to support research in MSA. Keep checking our blogs and MSA News to hear the latest findings and updates from the research field.
We are also pleased to be planning and supporting another research symposium in February 2024 at University College London. Once again, we are so grateful to Dr Viorica Chelban, our first Research Fellow who has being planning a complex and informative agenda to bring together researchers, clinicians and therapists who want to collaborate and exchange knowledge in MSA research.
Our second MSA Needs Survey undertaken last year, is helping to set the MSA Trust strategy for the next three years. My sincere thanks to everyone who so kindly took the time to complete the survey, very honestly and openly. I hope we can return your trust by developing a robust and supportive strategy for all our service users and supporters.
Finally, I want to reflect and express my thanks to the wonderful staff at MSA Trust. I am incredibly privileged to lead such a dedicated team and I hope that we can continue to do our best to find better solutions and support services for all of you affected by MSA. Wherever you are on World MSA Day, I hope that you will be surrounded by loved ones and friends to support you.
Disclaimer: The views and opinions expressed in the blogs published on these pages are those of the authors and do not necessarily reflect the official policy or position of the MSA Trust.
This is great news let’s hope the dedication of the doctors and research’s find a cure for MSA well done to all. Unfortunately my wife Susan passed away in March this year with this condition.