New Year, New You – The Multiple System Atrophy Trust is looking for new trustees
For immediate release: Wednesday 14 January 2015
The Multiple System Atrophy Trust (MSA Trust), the UK’s leading charity supporting people with the rare brain disease multiple system atrophy (MSA), is looking for new trustees to join its Board.
Executive Director, Nickie Roberts, said:
“We are a small and growing charity looking to hear from people who are passionate about helping those affected by MSA. Receiving a diagnosis of multiple system atrophy can shatter lives, that of the person with the disease and also their family and friends. Our Vision is to one day find the cause of and, ultimately, a cure for MSA whilst at the same time supporting those struggling with the challenges MSA inevitably brings.
“We’re particularly hoping to hear from people with expertise in communications and marketing; finance and human resources. It’s a New Year – are you ready for a fantastic challenge?”
MSA is a neurodegenerative disease that leads to premature death. It causes problems with movement, balance and the autonomic functions of the body such as bladder control, speaking and swallowing. People with MSA sometimes say this devastating disease can result in them becoming trapped in their own body. There is currently no known cause or cure for this disorder, which affects around 3,000 people in the UK.
The MSA Trust is the UK’s main source of information and support for people with MSA, their carers and families. The Trust was founded in 1997 by Sarah Matheson who, after being diagnosed with MSA, was shocked at how little was known about the disease.
Today the Trust provides the services of three Specialist MSA Nurses, runs a UK-wide support group network, manages a telephone and email advice service and funds vital research to find the cause of, and one day a cure, for MSA.
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Notes to editors:
Government information for trustees:
Franca Tranza: email@example.com, 07718 426076
Head of Communications
Nickie Roberts: firstname.lastname@example.org, 07794 480172
Executive Director, Mission