Raising Awareness

Multiple System Atrophy (MSA) is a rare and progressive neurological disorder that affects around 5 people in every 100,000. The rarity of the condition makes it even more challenging for the MSA community to find the support they need.

What can you do?

We will ask you to join in with awareness raising activities that will help raise the profile of MSA during MSA Awareness Week – both within your network of family and friends and with Heath and Care Professionals.

MSA Awareness Week is marked in March every year so watch this space for more details then.

Following on from our MSA Needs Surveys, which were completed in 2019 (read more about these here), some members of our community agreed to be filmed talking about their life with MSA and some of the difficulties they face.

Please do share far and wide to help people understand some of the physical and emotional struggles that people with MSA deal with everyday.

Click play below to hear their stories and please make a donation if you have been moved by it – DONATE HERE

Do you have a story about your connection to MSA, or your experience of it, that you would like people to know about? Are you planning or have done a fundraising event that you would like published in the press? Then you have come to the right place!

Download our media pack (below) and get helpful tips and advice on how to get your story published in the press, or have it covered on TV or radio.

We have also put together a press release template that you can download (below) and use.

If you would like more information about MSA and the work of the Trust, download our Fundraising Leaflet.

Please get in touch with us if you have any questions – fundraising@msatrust.org.uk

MSA Trust – Media Pack

MSA Trust – Media Pack

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Press Release Template

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