0333 323 4591

Support for Children

My Special Activity book – all about multiple system atrophy’ is a resource created for children aged 4-11 years old to support them through a loved ones diagnosis with MSA.

MSA is a complex disease with different symptoms that children may have noticed and which may have caused changes within the household. The book aims to address children’s questions in an interactive way that they can work thorough at their own pace. Topics covered within the book include ‘What does MSA mean?’, the most common symptoms of MSA, ‘How you’re feeling’ and how to explain MSA to other people.

Some of the activities can be completed by children independently but others will need family members and friends involvement. There will be stickers to use as we know how much children love these! We have also included some guidance notes to assist any adults who may be supporting a child to use the book.

If you would like to receive a copy of ‘My Special Activity book’ please complete the form below and a member of our Information and Services team will be in contact with you. If you have any questions or if the book raises any concerns about living with MSA please call 0333 323 4591 or email support@msatrust.org.uk to speak to an MSA Health Care Specialist.

This Activity Book is free of charge if you are registered with the MSA Trust but we welcome any donation you are able to give. If you live outside of the UK and Ireland then we are happy to post the Book to you but require the cost of postage to be covered. Please email support@msatrust.org.uk for further information. Thank you.

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Disclaimer

We have taken every care to ensure the accuracy of the information contained in this publication. However, the information should not be used as a substitute for the advice from appropriately qualified professionals. Speak to your doctor, qualified health care professional or legal professional before taking any action. Please note that personal views and opinions expressed are not necessarily endorsed by the Trust. The resource is produced independently, is not influenced by sponsors and is free from endorsement. References for this resource are available by contacting support@msatrust.org.uk. Your feedback helps us ensure we are delivering information to the highest standard. If you have any comments or suggestions, please contact us at support@msatrust.org.uk.