The list below is not exhaustive and doesn’t include additional peer-support social media groups which may be available in certain areas. We do our best to keep this page up-to-date but if you know of any organisations that are missing or any information that needs updating, please let us know at support@msatrust.org.uk and we will consider the request.
Europe
| https://parkinsonseurope.org/ | European Parkinson’s Disease Association |
| www.eurordis.org/about-eurordis | Rare Diseases Europe |
Denmark
| National Association of MSA (msa-danmark.dk) | Information and support for those living with MSA and their families. |
France
| www.ams-aramise.fr | Help and support for people living with MSA. |
Spain
| www.amsespaña.org | Atrofia Multisistémica España (MSASpain) has been created to support patients who have been diagnosed with MSA and their caregivers. |
Rest of the World
Australia
| www.psp-australia.org.au | PSP Australia provide information for people with MSA. |
| https://www.msaa.org.au/ | Multiple System Atrophy Australia – Focusing on patient support, medical education, public awareness and promising research. |
| https://www.fightparkinsons.org.au/ | Advice, support and education for the Parkinson’s community in Victoria. This includes people with Atypical Parkinsons, such as MSA. |
Canada
| www.parkinson.ca | Parkinson’s Society of Canada provide basic information about MSA. |
| www.msacanada.ca | Canada Defeat (Defeat MSA Alliance) is a coalition of not-for-profit organisations that support people with MSA, raise awareness of the condition and aim to educate more health and care professionals |
India
| www.parkinsonssocietyindia.com | Parkinson’s Disease & Movement Disorder Society offer basic information about MSA. |
New Zealand
| www.parkinsons.org.nz | Parkinson’s New Zealand offer information about MSA. |
United States of America
| https://missionmsa.org/ | Mission MSA offers information and support to those affected by MSA |
| www.psp.org | CurePSP offer information and support about MSA. They also fund research and educate healthcare professionals on atypical Parkinsonian disorders. |
| https://defeatmsa.org/ | Defeat MSA Alliance Defeat Multiple System Atrophy Alliance is a volunteer-driven, US-based 501(c)(3) charity committed to transforming the landscape of Multiple System Atrophy (MSA). |
| https://rarediseases.org | National Organization for Rare Disorders |
Global
| www.msaunited.org | Global consortium of charitable associations united in their dedication to fight the disease of Multiple System Atrophy |