It is important to remember that no two people living with MSA are the same and every person’s experience will be different. The MSA Trust aims to support every person affected by MSA throughout their journey.
How common is MSA?
Until recently MSA was thought to be a very rare disease. As we learn more about the disease, it has become easier to recognise and diagnose, though for many people it can still take several years to diagnose. Recent research suggests it affects about 4.5 people per 100,000 so that at any one time there are almost 3,500 people living with MSA in the UK. Parkinson’s disease is about 45 times more common, affecting about 210 people per 100,000 in the UK.
Who gets MSA?
MSA usually starts between the ages of 40-60 years, but it can affect people between the ages of 30-70. It affects males and females. Whilst we understand what happens in the brain, we do not know what causes MSA.
We do know that it is not hereditary (so it cannot be passed from parent to child) and it is not infectious or contagious. There is still much to learn and understand about MSA and research is ongoing to better understand the condition.
You can read and download our full Guide to MSA below or contact us for a copy to be sent to you or for further information.
