This study is looking for people with MSA to participate, with the aim to improve the accuracy of early diagnosis and track disease progression. We would like to include people with MSA, and also those who have not necessarily received a diagnosis of MSA as yet, but have MSA-like presentation / uncertain forms of atypical parkinsonism.
Alongside, the study is also looking to recruit people unaffected by neurological diseases. Since we are investigating MSA genetics, blood relatives of those affected by MSA are not eligible for the study.
There are two elements to this, a longitudinal study based at specific clinics in London, Oxford, Cambridge, Manchester, Brighton, Newport and Newcastle – which have a strong history of supporting people with MSA. There is also an option to take part in a cross-sectional study where patients can participate from anywhere in the UK or at one of 28 UK based research centres.
The longitudinal study involves several clinical and biomarker assessments over a three year period which include: a detailed neurology review, cognitive function tests, brain scans and blood samples. This will be followed by a ‘lighter touch’ follow up over the phone or during a clinic visit for a further two years.
The cross-sectional study involves donating a one-off blood sample at your local GP or hospital, together with filling in questionnaires at home.
Ultimately, it is hoped that the research will aid the development of new and improved treatments for MSA and raise the profile of MSA research in the UK.
If you are interested in participating in this study, please contact:
Riona Fumi, Prospect Coordinator
Email: prospect@ucl.ac.uk
Telephone: 07825 076394