MSA Trust

Raising awareness

Multiple system atrophy (MSA) is a rare and often poorly understood condition.

The Trust aims to raise the profile of MSA and the work of the Trust with the general public, healthcare professionals, government and healthcare related organisations. Our aim is to ensure that no one faces MSA alone.

Raising awareness will help towards

  • a faster and more accurate diagnosis by healthcare professionals
  • advocating for the MSA community
  • receiving fundraising support from the general public, companies and grant making organisations.

Do you have a story about your connection to MSA, or your experience of it, that you would like people to know about? Are you planning or have done a fundraising event that you would like published in the press? Then you have come to the right place!

Download our media pack (below) and get helpful tips and advice on how to get your story published in the press, or have it covered on TV or radio.

We have also put together a press release template that you can download (below) and use.

If you would like more information about MSA and the work of the Trust, download our Fundraising Leaflet. 

Please get in touch with us if you have any questions – fundraising@msatrust.org.uk

MSA Trust – Media Pack

MSA Trust – Media Pack

Download pdf (3.51 MB)

Press Release Template

Download docx (41.06 KB)

We are asking if you could join in with activities that will raise the profile of the awareness week – both where you live and work and with Heath and Care professionals. If you are pressed for time, just share our posts all week long using #MSAAwarenessWeek

Sell our MSA Ribbons (at your work place, local Clubs, Church etc.) for a minimum donation of £1. Order your ribbons and any of our merchandise through our online shop.

Have a MSAT collection at your local club, station or shopping mall and distribute our ribbons. Email fundraising@msatrust.org.uk for help with permits and collection materials.

Contact your local MP via email,letter or even Twitter to raise points about social care and provision of equipment, access to carer breaks and respite, and ensuring an increase in NHS funding will also benefit people with neurological conditions.

Following on from our MSA Needs Surveys, which were completed in 2019 (read more about these here), some members of our community agreed to be filmed talking about their life with MSA and some of the difficulties they face.

The first film that we are launching features Helen who lives in the Republic of Ireland.

Please do share far and wide to help people understand some of the physical and emotional struggles that people with MSA deal with everyday.

Click play below to hear Helen’s story…

Do NOT follow this link or you will be banned from the site!

We regret to announce the MSA Trust will be suspending all of our Support Groups and our memorial event due to the outbreak of the Coronavirus Covid-19. For our full statement, please click here. Our other services and support will continue to be unaffected and available to everybody affected by MSA. For any questions please contact us at support@msatrust.org.uk.

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