MSA Trust

Preparing for advancing MSA

This section aims to address issues that may be experienced as part of advanced MSA.

If you have recently been diagnosed you may find it more helpful to read the Sections on Newly Diagnosed and Living With MSA.

Advanced MSA refers to when your symptoms start to have a significant impact on your day to day life. This may be when your care needs become more intensive, for example, if you are needing to use a wheelchair most of the time, or you may be having difficulty eating or drinking or being understood by others.

We have a range of factsheets that deal with management of MSA which can be accessed here.

Our Nurse Specialists have a wide range of expertise regarding how to improve your quality of life when symptoms become more complex and challenging. They can also give practical advice about some of the adaptations and equipment available to make your life easier and when to think about carer’s support – both for existing family carers and for moving towards considering more formal care arrangements. Their contact details are here.

Our factsheet on Palliative Support is available to download below and gives some very helpful explanations of the type of help that can be provided to you in a range of environments (including your home) that can make a real difference to your life and the lives of those who care for you.

Compassion in Dying, an organisation that supports people to make advanced decisions about planning their care, have produced useful guides that covers topics such as planning ahead, recording your wishes and how to start a conversation with loved ones and healthcare professionals. Two of their key Guides can be downloaded below. You can find out more on their website.

Do NOT follow this link or you will be banned from the site!

We regret to announce the MSA Trust will be suspending all of our Support Groups and our memorial event due to the outbreak of the Coronavirus Covid-19. For our full statement, please click here. Our other services and support will continue to be unaffected and available to everybody affected by MSA. For any questions please contact us at

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