MSA Trust

Government Advice for Vulnerable People during Covid-19

New measures have been announced for those considered to be extremely vulnerable due to their medical conditions.  We hope to update you with specifics as more information becomes available.

All those who have MSA or care for someone with MSA should be practicing shielding – the advice can be found here

This information has been adapted from information provided by the Genetic Alliance. Further information regarding local assistance is changing everyday and we will update it as we can.


A new Local Support System will make sure those individuals self-isolating at home and who are without a support network of friends and family will receive basic groceries. Community pharmacies will support those who need help getting their medicines delivered.

Further Information

You’ll be able to register for a new service if you or someone you care for is extremely vulnerable to coronavirus and needs support.The service will be ready over the week beginning 23 March 2020. You’ll be able to register from this page – visit from Tuesday 24 March 2020 to register for the support that you need.

If you’re finding it hard to cope with feelings of tension and anxiety due to coronavirus complete the Every Mind Matters quiz and get your personalised mental health action plan


First Minister Mark Drakeford has launched a new campaign about how to help people who are staying at home because of coronavirus. ‘Looking Out for Each Other‘ provides practical guidance about how everyday tasks can be done safely, without physical contact to minimise the risk of contracting Covid-19. It also shares information about how to stay mentally and physically active.

A new online hub includes a ‘helping hand’ card, which can be downloaded and put through the letterboxes of neighbours to offer help to those who are isolating.

Further information about employment rights, benefits, business support, travel, food, retail, cancellations, education and more can be found here.


For those that do not have symptoms but are looking for general information, there is a free helpline (0800 028 2816) which is open from 8:00 – 22:00 each day.

The First Minister, Nicola Sturgeon, announced ‘shielding’ measures to protect the most most clinically vulnerable in her speech yesterday. The First Minister said for this group, the guidance on isolation would be strict and that they would receive help with their conditions, access to medicine and services and food and supplies from GPs and local resilience partnerships.

Breathing Space is a free and confidential phoneline service for any individual who is experiencing low mood or depression. They can be contacted on 0800 83 85 87.

NHS Living Life is a free and confidential telephone counselling service based on a Cognitive Behavioural Therapy approach. The service is available to anyone over the age of 16 suffering low mood, mild to moderate depression and/or anxiety. The service can be accessed by referral from a GP and you can phone the service directly on 0800 328 9655.

Samaritans offers confidential, emotional support, on the telephone or online, to anyone who is feeling distress or despair. You do not have to be feeling suicidal to contact Samaritans. Their helpline is 116 123 (free from landlines and mobiles – Monday to Sunday 24 hours a day).


Republic of Ireland has the below site for those identified as at-risk.

Do NOT follow this link or you will be banned from the site!

We regret to announce the MSA Trust will be suspending all of our Support Groups and our memorial event due to the outbreak of the Coronavirus Covid-19. For our full statement, please click here. Our other services and support will continue to be unaffected and available to everybody affected by MSA. For any questions please contact us at

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