MSA Trust

Advice on Care Support Whilst Covid-19 is a Concern

As both the NHS and Social Services are under increasing pressure we are advising our members to speak to their family and friends about the support they can offer. Whilst frequent phone calls and support with shopping and using technology are helpful there is a need to go further.

Regular carers (a family member or professional carers) may be unable to continue in their role, or be unable to visit, if they become unwell. It is important to have a back up plan. If you have agency carers talk to the agency concerned about how they would manage this situation. Members who require assistance with personal care tasks should, wherever possible, ensure that family members have access to detailed written information about their care routines and written information on the use any specialist equipment (for example, hoists, adjustable beds, peg feeding and communication aids) so that they can pass this on to whoever takes on the caring role. As our members are advised to avoid face to face contact with family members who are not living in the same house (and in some cases with those that are) consider emailing this information to family members or talk it through with them by phone. Family members need to know how to respond in an emergency and what may constitute an emergency.

We suggest you:

  • Ensure that detailed, written care routines and care plans are available and that these are kept in a readily accessible place
  • Provide a list of medications with dosages and timings
  • Provide a list of contact details for professionals involved in your care and where necessary a description of their role
  • Provide information about formal documents such as Advanced Care Plans, Advance Decisions to Refuse Treatment, Lasting Powers of Attorney etc

If you do not have access to family or friends please consider making your GP surgery aware of your situation. In many cases Social Services would be responsible for helping arrange alternative care and the more information available to them the better. Ensure you and your family have the contact details for your GP and local Social Services.

In all cases please follow the government advice and the advice of your own medical team.

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We regret to announce the MSA Trust will be suspending all of our Support Groups and our memorial event due to the outbreak of the Coronavirus Covid-19. For our full statement, please click here. Our other services and support will continue to be unaffected and available to everybody affected by MSA. For any questions please contact us at

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