MSA Trust

Raising awareness

Multiple system atrophy (MSA) is a rare and often poorly understood condition.

The Trust aims to raise the profile of MSA and the work of the Trust with the general public, healthcare professionals, government and healthcare related organisations. Our aim is to ensure that no one faces MSA alone.

Raising awareness will help towards

  • a faster and more accurate diagnosis by healthcare professionals
  • advocating for the MSA community
  • receiving fundraising support from the general public, companies and grant making organisations.

Do you have a story about your connection to MSA, or your experience of it, that you would like people to know about? Are you planning or have done a fundraising event that you would like published in the press? Then you have come to the right place!

Download our media pack (below) and get helpful tips and advice on how to get your story published in the press, or have it covered on TV or radio.

We have also put together a press release template that you can download (below) and use.

If you would like more information about MSA and the work of the Trust, download our Fundraising Leaflet. 

Please get in touch with us if you have any questions –

MSA Trust – Media Pack

MSA Trust – Media Pack

Download pdf (3.51 MB)

Press Release Template

Download docx (41.06 KB)

We are asking if you could join in with activities that will raise the profile of the awareness week – both where you live and work and with Heath and Care professionals. If you are pressed for time, just share our posts all week long using #MSAAwarenessWeek

Sell our MSA Ribbons (at your work place, local Clubs, Church etc.) for a minimum donation of £1. Order your ribbons and any of our merchandise through our online shop.

Have a MSAT collection at your local club, station or shopping mall and distribute our ribbons. Email for help with permits and collection materials.

Contact your local MP via email,letter or even Twitter to raise points about social care and provision of equipment, access to carer breaks and respite, and ensuring an increase in NHS funding will also benefit people with neurological conditions.

We are pleased to be working alongside NHS England in conducting a webinar training session aimed at Health and Care professionals (HCP). We hope this will help them provide even better support to people affected by MSA, so encourage your local HCP to sign up to it on 26th March – click here.

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