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I am still pedaling but electric bike now. Legs weak but can push the peddles around with help! I like the advice about recumbent bike (trike). No cheap alternative but definitely a safer idea to get around. A work colleague suggested a bit of crowd funding.
So check the link and the amazing response!
I had a home visit by the PIP nurse team recently and will keep you posted on any outcome. I am doing some stuff myself but struggling to weigh bear / walk any distance. low BP is making showering risky due to chance of slippage. most household chores I am leaving to my wife.
so we will see what happens………….
Thanks for sharing all your experiences about the BP and stuff. I have struggled with the BP recently. It manifests itself as neck and shoulder pain.I get it checked by staff at work ( I work in a hospital ) and they are shocked with the readings 60/30 and such! I have been given a steroid to take, not sure if it helps but hoping. BP has been better recently, maybe less bike riding helps! My problem seems to be tingly feet and weakness especially when I weight bear for longer than a few minutes. walking is out the question, but i can peddle for a long way!! keep going everybody
thanks for the response and sorry to here about your lack of riding. I really enjoy my riding obsession and am struggling to come to terms with the future and probable lack of peddling. I fell off in December and broke my collar bone. only low speed and my fault, crossing a kerb from road to pavement. Not sure why but probably due to lack of awareness caused by my msa! so i didn’t bounce and with conservative treatment it might be six months until i am healed. my clavicle is in two bits!!