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purple ice buckets?

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Home Forums Campaigns and consultation purple ice buckets?

This topic contains 6 replies, has 5 voices, and was last updated by Avatar RichardRivas 8 months, 2 weeks ago. This post has been viewed 773 times

Viewing 7 posts - 1 through 7 (of 7 total)
  • Author
    Posts
  • #1224
    Avatar
    leo vogel
    Participant

    40 000 000 US $. Up to yesterday. Well done ALS friends.
    I think we need to invest in professional marketeers as well. And lots of MSA persons will have to come out of the closet.
    Start shaking up your own network.
    Leo.

    #2856
    Avatar
    Freda
    Participant

    Leo

    That’s a lot of dollars. No cruelty inflicted on the water either. All the other possibilities like buckets of worms seem a little unkind.

    Freda

    #2868
    Avatar
    leo vogel
    Participant

    the ALS ice bucket challenge has almost reached 100 million us$. That is serious money to invest in research.
    Leo.

    #2869
    Avatar
    Freda
    Participant

    A hard act to follow.

    Our local hospice volunteer newsletter is asking for ideas, It will not I think be the only organisation looking for simple, easy to administer ideas which appeal to people’s sense of “sooner him than me”

    As Leo says – shake up your networks and see if some brilliant ideas fall out… and do it soon before everyone loses interest..
    Freda

    #2876
    Avatar
    janel
    Participant

    I take the view that $40m going into research into ALS/MND is no bad thing as it is going to further understanding of the human brain and its disfunctions, so MSA may well be an indirect beneficiary.
    The ice bucket challenge was one of those seminal, off-the-wall ideas that captured the imagination of the global public – I think the US Purple Rain challenge is trying to emulate it, but is a pale imitation. Still, good luck to them!

    #3150
    Avatar
    Melissa
    Participant

    We have an opportunity to get an article into the BMJ to raise awareness of MSA.
    If anyone has an experience of delayed diagnosis (possibly referred to a Urologist long before a Neurologist) that they are willing to share, please contact Franca Tranza, Head of Communications at our HQ. Tel 0207 940 4666.
    Thank you, Samantha.

    #13886
    Avatar
    RichardRivas
    Participant

    Agree with you. investment is very important

Viewing 7 posts - 1 through 7 (of 7 total)

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