MSA Trust


PIP payments

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This topic contains 1 reply, has 2 voices, and was last updated by Avatar Diane Ball 1 month, 4 weeks ago. This post has been viewed 57 times

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    I have been newly diagnosed with MSA and at the moment still working but not sure how long I will be able to, hoping for a lot longer yet!!
    I have had MSA symptoms for at least 4 years prior to diagnosis so feel that I am unfortunately well down the MSA road 🙁
    Please has anyone had experience of PIP payments (Personal Independence Payments) ? If you have been diagnosed with a terminal illness your GP will fill out a DS1500 and the application process will go smoothly.
    does this apply to MSA ?

    thanks for any advice


    Diane Ball

    Hi again Peter.
    For you to get the PIP as terminal you have to be diagnosed as expected death within 6 months – I don’t think that is how you are seeing your situation!!
    Getting PIP is tricky! Geoff got it at first application but others don’t. You really need guidance to help fill in the forms, it is important to use the correct wording in order to trigger points!!There is an advisor at the MSA Trust you can talk to

    -Our Advocacy Officer Jane Stein is available from Mondays to Thursdays 9am until 5pm.

    She is unable to make home visits but attends some of our local MSA Support Groups on an occasional basis.

    Jane can be contacted via our main office on 0333 3234591, by email at or through your MSA Nurse Specialist.

    Although when we applied this wasn’t available so we joined a website called ‘Benefits and work’ which has a joining cost but then gives you access to guides for filling the forms out. A Parkinsons Nurse might help or even Citizens Advice.

    Hope that helps

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