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- 8th August 2019 at 7:56 am #16930breadstixParticipant
I have developed dropped head syndrome which is very debilitating and painful. I am currently waiting for physio .
Does anyone have any tips for dealing with this condition ?12th August 2019 at 6:45 pm #17283Forum ModeratorParticipant
I am sorry to hear you have developed antecollis.
In my experience the hard and soft collars that physiotherapists can provide can’t be tolerated for long periods, but are worth trying. Some people find the bean-bag type neck cushions are helpful. For pain you could try some Ibugel anti-inflammatory gel (can be bought over the counter-but don’t use if you have asthma) and the lavender wheat bags that you warm in the microwave can also be soothing.
Do talk to your Neurologist as sometimes botox injections can help, (can sometimes make swallowing worse depending on which muscles are involved) and the botox can last for about 4-6 months, so would need to be repeated, but isn’t too uncomfortable.
Do discuss further with your MSAT nurse specialist if you wish.
Samantha. MSAT.14th August 2019 at 12:46 pm #17445breadstixParticipant
I’m seeing my neurologist next month, hopefully botox is possible. I’ve tried most other things without much success !
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