Multiple System Atrophy Trust is the UK’s main support and information service for people who have multiple system atrophy (MSA) – a rare neurological disease with no known cause or cure. As well as helping people who have MSA, we are also there to support families whose lives are affected by MSA as well as carers and health and care professionals who look after and treat people with the disease.
Our vision is a World Free of MSA. We are committed to making this happen by funding research to find the cause of, and one day a cure for, MSA.
Multiple System Atrophy Trust
The Trust currently employs a small team of staff and specialist nurses who provide the following services across the UK:
- Telephone and email advice service offering support and information for people with MSA, carers, health and social care professionals
- Guides and fact sheets on a variety of aspects of living with MSA
- Regular magazine
- Regional and online support groups
- Comprehensive website
- Education sessions for healthcare professionals
- Latest MSA research updates
- Contact scheme for people with MSA and carers
- Campaigning and advocating on behalf of people affected by MSA
- Advice on organising or becoming involved in a fundraising event
To ensure our services are accessible to everyone, the Trust is committed to providing its services free of charge.
The Multiple System Atrophy Trust is a charity funded entirely by voluntary donations. In order for us to continue supporting people affected by MSA, please consider becoming a regular donor or organising a fundraising event (see register now).
The Trust is managed by a Board of Trustees who meet on a regular basis. Its Resources, Audit and Governance Committee ensures funds are appropriately managed. The Trust is also publicly supported by Patrons and ‘Champions’ of the Trust.
The Scientific Advisory Panel ensures proper and fair allocation of research funds. The Trust’s services and information is reviewed by a Medical Content Group comprising MSA nurse specialists, consultant physicians, Trust staff and a User Group of people with MSA and carers.