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Author Topic: Hello to everyone
denise-
mclean
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Posts: 4
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Post Hello to everyone
on: June 22, 2012, 22:57
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Hi,
I was diagnosed with Parkinson's Disease in Nov 2010. Four consultants/specialists later they now believe I have MSA. I'm still reeling from it all and have visited your site a couple of times but didn't have the courage to introduce myself. So here goes. My name is Denise, I am 57 and live in Largs, Scotland. I am married to Gordon and have 2 lovely daughters. I retired from teaching in Aug 2009 after 30+ years looking forward to a new beginning! I really don't have much info to share but found reading items on the forums very helpful. Thanks and hopefully I might be able to contribute soon.
Denise x
linann
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Posts: 56
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Post Re: Hello to everyone
on: June 23, 2012, 13:43
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Hi Denise
Welcome to the forum...it does take courage to lay your soul bare on here I agree. However, I find it is worth it to share with people who know exactly how you feel. Indeed, I share your frustration about retirement...my problems began when I was 60, just as I went from full time to part time in my job. I had done nearly 20 years in a high street bank and was able to claim my company and state pensions, whilst still earning a decent salary !

We planned to go on lots more holidays, improve our home and generally enjoy ourselves. This wasn't to be and within 2 yrs, I was using a wheelchair outdoors and felt as though I had been robbed of my future!

Still life goes on in different ways..my lovely husband Pete is becoming more of a carer these days but we still enjoy a good laugh when we can :-)

One of our members lives in Scotland...Samantha Crawford who is only 37. Look out for her posts as she is an inspiration to us all. There are a few of us on Facebook too, so maybe you can join us there as well ?

Also, check out if there is a support group any where near you and don't forget the specialist nurses on here...they will answer any queries you may have.

I am happy to chat anytime and do hope you will keep in touch.

Regards

Lin xx
Starlight-
Memories
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Posts: 23
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Post Re: Hello to everyone
on: July 4, 2012, 13:15
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Hi Denise
It certainly is scary posting for the first time but the support you will find is amazing. You have lots of information to share because you are the expert on your condition which will help others who maybe are just watching posts without joining in. So Sorry that MSA has brought us together but happy to say hello to you.
My dad passed away 6th July last year and I was with him when he took his last breath.
I would like to invite you on to Face Book to MSA UK and Ireland, MSA Buddies and MSA Angels where the support is amazing from as far as USA, Canada, Australia and people have been posting from India. These are closed groups due to the nature of the posts.
Look forward to hearing from you again.
Friend request - Sharon Maume - if you want to join.
Best wishes Sharon in Memory of Ged Maume 6/7/11
denise-
mclean
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Posts: 4
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Post Re: Hello to everyone
on: August 1, 2012, 16:24
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Hi newbie,

Have set up a Facebook account for myself in order to talk to more MSA sufferers. I haven't got any further so if you don't.mind I'll put in a friend request.

Thanks forr your advice.

Denise xx
linann
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Posts: 56
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Post Re: Hello to everyone
on: August 1, 2012, 17:35
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Hi Denise
Hope you are ok.

I too am on Facebook and have sent you a friend request.

Kind regards

Lin Newbold x
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