News & Events
Sharing experiences of living with MSA – use of equipment
The Trust is interested in finding out about the different types of equipment you use, or have used, to help you with MSA – from practical aids to communication tools – and whether you would recommend them to other people, and why. Are advances in modern technology having an impact, for example iPads? Have you encountered any difficulties in getting hold of bits of equipment, what about the cost?
If you have thoughts/experiences you’d like to share with us, please either leave a message on the Blog or contact us.
Many thanks and look forward to hearing from you!
Posted 15/04/2011 in News & Events, The Trust | 0 Comments
Welcome to the new Multiple System Atrophy Trust website
We’ve pulled together a wide range of information we hope will be useful to you, whether you have MSA yourself or you are a carer, family member or friend – all of which you can share with people you would like to be better informed either by downloading or forwarding pages of the site. We’re very happy for you to do this! We’ve also introduced some new elements, such as our online support community, designed to make it easier for you to get to know other people experiencing life with MSA, as well as a map showing you where our regional support groups are.
Many people have told us, including in our recent membership survey, that they want multiple system atrophy and the Trust to be more visible, for more healthcare professionals and the general population to know about MSA and to understand what it’s about. We’ve given our Facebook and Twitter icons a dominant place on the site so you can help spread the word on MSA to your networks – we can work together at raising its profile.
You’ll also find throughout the site stories and photos of real people – individuals, couples, families.
We hope their stories, and the information in this site, help you to live your own life with MSA. Please do contact us if you would like to know more.